EDUCATION & RESOURCES
The organizations listed below are good resources,
The Alzheimer’s Association – the largest private, not-for-profit supporter of Alzheimer’s disease research – provides information about the disease, as well as useful resources and supportive programs to help individuals with Alzheimer’s and their caregivers cope with and understand the disease. The Alzheimer’s Association also offers information about research advances, publications and events.
Alzheimer’s Association Helpline – 1.800.272.3900
The Alzheimer’s Association Helpline is available 24/7 and provides dependable information and emotional support to those who need assistance – individuals with memory loss, caregivers, healthcare professionals and the general public. The helpline staff can answer questions about Alzheimer’s disease and memory loss, medications and treatment options. Additionally, the helpline can provide tips on caregiving and offer referrals to local community events and support programs.
ADEAR, hosted by the National Institute on Aging, provides information from a database that contains almost 8,500 pieces of material about Alzheimer’s disease – from journal articles to brochures to newsletters and reports. Information can be found about research, diagnosis, treatment options, as well as breaking news and publications.
Frontotemporal degeneration (FTD) is a disease process that results in progressive damage to the temporal and/or frontal lobes of the brain. It causes a group of brain disorders that share many clinical features. FTD is also commonly referred to as frontotemporal dementia, fronto-temporal lobar degeneration (FTLD), or Picks disease.
LBD is not a rare disease. It affects an estimated 1.4 million individuals and their families in the United States. Because LBD symptoms can closely resemble other more commonly known diseases like Alzheimer’s and Parkinson’s, it is currently widely under-diagnosed. Many doctors or other medical professionals still are not familiar with LBD. – See more at: http://www.lbda.org
Brain injury is not an event or an outcome. It is the start of a misdiagnosed, misunderstood, under-funded neurological disease. People who sustain brain injuries must have timely access to expert trauma care, specialized rehabilitation, lifelong disease management, and individualized services and supports in order to live healthy, independent, and satisfying lives.
As one of America’s leading educators on dementia, Teepa Snow’s philosophy is reflective of her education, work experience, available medical research, and first hand caregiving interactions. Working as a Registered Occupational Therapist for over 30 years her wealth of experience has led her to develop Positive Approach™ to Care techniques and training models that now are used by families and professionals working or living with dementia or other brain changes throughout the world.